Tag: The Marfan Foundation

Honoring Lucas: A Family’s Mission to Raise Loeys-Dietz Syndrome Awareness

Note: This story discusses loss of a young person’s life due to a genetic aortic...

Awareness, News February 1, 2026February 2, 2026

January 16, 2026January 16, 2026

The Northern Illinois Chapter’s Annual Chocolate Fundraiser

February is Marfan Awareness Month! Let's come together for our Chili and Chocolate Social...

January 12, 2026January 12, 2026

Walk For Victory – Michigan

Join the Walk for Victory movement! Together, we celebrate community! Meet and reconnect...

December 18, 2025December 18, 2025

A Lunch with Heart Palm Beach

We are delighted to present A Lunch with Heart Palm Beach, a sophisticated new addition to The...

December 18, 2025December 18, 2025

Camp Victory for Kids: California 2026

Don’t miss out on this opportunity for your child/children, ages 7-16, to attend Camp Victory...

December 18, 2025December 18, 2025

Camp Victory for Kids: Georgia 2026

Don’t miss out on this opportunity for your child/children, ages 7-16, to attend Camp Victory...

December 18, 2025December 19, 2025

Camp Victory for Families: Georgia 2026

Join us for this exciting opportunity to meet other families impacted by Marfan, VEDS,...

Together, We Can Know the Signs
and Fight for Victory

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Know the signs. Fight for victory.

Join us in the fight for victory over Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions. Help us create a world in which everyone with these conditions can live their best life.

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Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory