Best Practices for Preclinical Thoracic Aortopathy Studies
Join the Genetic Aortic Network on April 21 at 11:00 a.m. ET for a webinar on highlights from...
Tag: The Marfan Foundation
Empowered Pain Relief Course
The Marfan Foundation is pleased to offer Empowered Relief®️, a free 2.5-hour pain management...
Camp Victory Information Session
Join us to learn more about our Camp Victory programs in Georgia and California. Camp Victory for...
Driving for DEFY Golf Tournament
2026 marks the 12th anniversary of the Driving for DEFY golf outing! Together, we have raised over...
Canadian and U.S. Loeys-Dietz Syndrome Organizations Team Up to Help People Living with Rare Condition Find Community
First-ever joint virtual event to share personal perspectives Montreal, Quebec | Port...
Hello, My Name is Jeanette: “A family diagnosis is a warning and an opportunity to save lives.”
Jeanette shares her first-person experiences in this post. Please note: this story discusses loss...
Simposio virtuale sulle sindromi di Marfan, Loeys-Dietz, VEDS e Stickler
Invitiamo i pazienti e le loro famiglie a partecipare a un simposio virtuale con presentazioni, in...
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