Des vergetures (striae atrophicae) peuvent apparaître sur la peau de quiconque, en particulier à la suite d’une croissance rapide pendant l’adolescence, d’une grossesse ou d’une perte ou prise de poids importante. Les personnes atteintes du syndrome de Marfan sont sujettes à la formation de vergetures, souvent à un âge précoce et sans changement de poids. Des marques ont tendance à apparaître dans les parties du corps soumises à des contraintes, notamment les épaules, les hanches et le bas du dos.
Related Resources
Teens and Marfan Syndrome
If you were recently diagnosed with Marfan syndrome or if you have known about it for years, there are probably hundreds of thoughts, questions, and concerns rushing through your head. On one hand, there is a whole new world of medical information to learn. On the other hand, there is your life as a teen. […]
Tags: All , Caregivers, Patients & Families
Patient Care Coordination Instructions
In order to have better outcomes in the emergency department for people with genetic aortic and vascular conditions, a Patient Care Coordination Note (PCCN), can provide triage nurses and ER physicians, with life-saving information for these rare conditions. This patient care coordination note appears in the upper left hand corner in red, when you open […]
Tags: All, VEDS , Healthcare Professionals, Patients & Families
Know the signs.
Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.