Author: Monica Newnam

Monica Newnam, lives with her husband, Josh, and their family in Rockdale, TN.

Carrying His Heart in Mine

My story about Marfan syndrome mostly takes a back seat to my husband's. He's the one with Marfan,...

Awareness, Community, Quality of Life January 13, 2022January 13, 2022

Together, We Can Know the Signs
and Fight for Victory

View all Divisions

Marfan
Foundation
Loeys-Dietz Syndrome Foundation
The VEDS
Movement

View Our science and treatment arm

Know the signs. Fight for victory.

Join us in the fight for victory over Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions. Help us create a world in which everyone with these conditions can live their best life.

Donate Now

Carrying His Heart in Mine

Stay Connected on Social Media

Have a question? We can help.

Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory