
Get Involved
Six Ways to Get Involved
We can help you find meaningful ways for you to make a difference and help people with genetic aortic and vascular conditions live their best life.
Upcoming Events
We hold many events from coast-to-coast throughout the year to raise awareness of Marfan, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions, and to raise critical funds to support our work.
Monthly
Events for April
28th


Events for May
1st
No Events
Events for May
2nd
No Events
Events for May
6th

Events for May
8th
No Events
Events for May
9th



Events for May
10th
No Events
Events for May
11th
No Events
Events for May
12th


Events for May
16th

7:45 am - 3:00 pm
NYC/Tristate Symposium: Living Better with Marfan, Loeys-Dietz, VEDS, & Stickler
Ruben Conference Center - Weill Cornell Medicine


Events for May
17th
No Events
Events for May
18th


Events for May
20th


Events for May
21st
No Events
Events for May
22nd
No Events
Events for May
23rd
No Events
Events for May
24th
No Events
Events for May
26th


Events for May
29th
No Events
Events for May
30th

Featured Events
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Every trip I make to a Foundation event, every donation I make, every time I post on social media, everything I do, I do it from the bottom of my heart, hoping that someone else’s life will be changed in the same way the Foundation changed mine.












