Get Involved
Six Ways to Get Involved
We can help you find meaningful ways for you to make a difference and help people with genetic aortic and vascular conditions live their best life.
Upcoming Events
We hold many events from coast-to-coast throughout the year to raise awareness of Marfan, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions, and to raise critical funds to support our work.
Monthly
Events for March
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Events for March
21st
4:00 pm - 5:00 pm
Variants of Uncertain Significance: What a VUS Result Means for You and Your Family
Zoom
Events for March
23rd
Events for March
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Events for March
25th
Events for March
28th
8:00 am - 2:30 pm
Kentucky Symposium: Living Better with Marfan, Loeys-Dietz, and VEDS
S. Randolph Scheen Family Conference Center Norton Children’s Hospital
Events for April
1st
Events for April
2nd
Featured Events
An Award-Winning Foundation
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Every trip I make to a Foundation event, every donation I make, every time I post on social media, everything I do, I do it from the bottom of my heart, hoping that someone else’s life will be changed in the same way the Foundation changed mine.