Related Resources
Marfan Fashion Resources
Have a hard time finding pants with long enough legs? Can’t find shoes that fit? Your Marfan Foundation Teen Council came up with the idea for this resource just for you! If you have any suggestions of brands/ stores that should be added, please send them to us at staff@marfan.org. This guide provides information about brands […]
Z-Score Calculator for Children
For patients up to 25 years of age: utilizing systole, inner to inner edge measurement of the sinuses of valsalva according to personal communication from Steve Colan.
Physical Activity Guidelines
Regular exercise improves both physical and emotional well-being and can be incorporated safely into the routine of people with Marfan syndrome. Therefore, they are encouraged to adapt health measures that protect them from Marfan features that can worsen and from medical conditions that are simply part of the aging process. With an early diagnosis, treatment, and lifestyle adaptations, many […]
Tags: Marfan Syndrome , Caregivers, Patients & Families
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