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Die Haut Beim Marfan-Syndrom
Dehnungsstreifen auf der Haut (Striae atrophicae) können bei jedem auftreten, insbesondere als Folge von schnellem Wachstum in der Pubertät, von Schwangerschaft oder starker Gewichtszunahme oder -abnahme. Patienten mit Marfan-Syndrom neigen dazu, Dehnungsstreifen zu entwickeln, und das oft schon in jungen Jahren und ohne Gewichtsveränderungen. Diese Streifen tauchen in der Regel in Bereichen des Körpers auf, […]
Tags: Marfan Syndrome , Patients & Families
Ehlers-Danlos Syndrome Hypermobility
Ehlers-Danlos Syndrome hypermobility type is one of six different types of Ehlers-Danlos syndromes, and it is the most common. Ehlers-Danlos syndrome hypermobility type is a connective tissue disorder that predominantly affects the skeletal system. It is characterized by loose joints, often associated with chronic (long-term) joint pain. What other names do people use for Ehlers-Danlos […]
Family Planning and Pregnancy
Decisions about family planning can be difficult and very emotional when one of the prospective parents has a genetic disorder, such as Marfan syndrome. Before making any decisions, parents should understand the many options now available, as well as the potential risks to the child and the mother. A genetic counselor or the nurse in […]
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