In order to have better outcomes in the emergency department for people with genetic aortic and vascular conditions, a Patient Care Coordination Note (PCCN), can provide triage nurses and ER physicians, with life-saving information for these rare conditions. This patient care coordination note appears in the upper left hand corner in red, when you open the outpatient chart under snapshot and in some other views depending on how your EPIC is set. The PCCN can outline critical information to treat patients with rare conditions.
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Heart and Blood Vessels
People with Marfan syndrome frequently have problems with their heart and blood vessels. Sometimes, these problems are very serious. The most common complication affects the aorta (the main blood vessel carrying blood from the heart to the rest of the body). Heart valves may be affected as well. Less often, blood vessels other than the […]
Tags: Marfan Syndrome , Patients & Families
Chirurgie Cardiaque
Les personnes atteintes du syndrome de Marfan présentent souvent des problèmes au niveau du coeur et des vaisseaux sanguins. Ces problèmes peuvent parfois être très graves. La complication la plus fréquente concerne l’aorte (le principal vaisseau sanguin qui transporte le sang du coeur vers le reste du corps). Les valves cardiaques peuvent également être affectées. […]
Tags: Marfan Syndrome , Patients & Families
La Pelle Nella Sindrome di Marfan
Le smagliature della pelle (striae distensae) possono manifestarsi in qualsiasi persona, in particolare a seguito di una crescita rapida durante l’adolescenza, durante la gravidanza o in caso di un importante aumento o calo di peso. Chi soffre di sindrome di Marfan ha una maggiore tendenza a sviluppare smagliature, spesso in giovane età e senza che […]
Tags: Marfan Syndrome , Patients & Families
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