Exercise & Physical Activity

With the right guidance, children and adults living with Marfan syndrome, Loeys-Dietz syndrome (LDS), or Vascular Ehlers-Danlos syndrome (VEDS) can — and should — safely include movement and exercise in their daily lives.

Our latest resources focus in part on shared decision making. Because recommendations are individualized, shared decision-making is the foundation of safe activity planning.

Shared decision-making means you and your healthcare team work together to:

•  Review your health status, limitations, and goals
• Understand which activities are likely safe for your condition
• Create a plan that balances safety with enjoyment and independence
• Revisit and update the plan as your health and life change

Please review the full Exercise & Physical Activity Resource and key takeaways to learn more. As always, please be sure to consult with your healthcare team before taking part in any physical activity.

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