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This Parent Toolkit is a resource for parents of children with Marfan, Loeys-Dietz, VEDS, or another genetic aortic condition. It offers resources to help you deal with your child’s school, doctors, and healthcare, and guide you to additional resources for information and support.
Aquí están algunas de las preguntas más frecuentes sobre el síndrome de Marfan y trastornos relacionados con las respuestas proporcionadas por el Dr. Juan Bowen, Mayo Clinic, quien es un experto médico líder en el síndrome de Marfan y trastornos relacionados.
Prepare for Victory: Virtual Medical Symposium Series is a webinar series that will arm you with the latest diagnosis and treatment information from the experts.
Professional Advisory Board Member Enid Neptune, MD, Johns Hopkins, addresses some of the myths around COVID-19.
Use this form to request printed versions of our fact sheets, brochures, and booklets.