Tag: Loeys-Dietz Syndrome Foundation

Connor Metz Legacy Drives University of San Francisco Loeys-Dietz Syndrome Training for 1,500 Nursing Students

13-year-old Connor Metz tragically lost his life due to aortic dissection resulting from...

Awareness, News March 29, 2026March 29, 2026

Events, Events News February 23, 2026February 23, 2026

Canadian and U.S. Loeys-Dietz Syndrome Organizations Team Up to Help People Living with Rare Condition Find Community

First-ever joint virtual event to share personal perspectives Montreal, Quebec | Port...

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