Canadian and U.S. Loeys-Dietz Syndrome Organizations Team Up to Help People Living with Rare Condition Find Community
First-ever joint virtual event to share personal perspectives Montreal, Quebec | Port...
Tag: Loeys-Dietz
People’s Perspectives: Living with Loeys-Dietz Syndrome
For the first time, the Loeys-Dietz Syndrome Foundation Canada and the Loeys-Dietz Syndrome...
More than 700 People Take Part in 2026 South Florida Walk for Victory
A bundled-up crowd took part in the South Florida Walk for Victory on Sunday, 2/1 at T.Y. Park in...
Honoring Lucas: A Family’s Mission to Raise Loeys-Dietz Syndrome Awareness
Note: This story discusses loss of a young person’s life due to a genetic aortic...
How to Read a Genetic Testing Report
How to Read a Genetic Testing Report: A Practical Guide for Individuals and Families Join the...
Aortic Emergencies: Webinar for Aussies and Kiwis
Please join us for a webinar on aortic emergencies that is geared toward people living in...
Walk For Victory – Michigan
Join the Walk for Victory movement! Together, we celebrate community! Meet and reconnect...
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