Connor Metz Legacy Drives University of San Francisco Loeys-Dietz Syndrome Training for 1,500 Nursing Students
13-year-old Connor Metz tragically lost his life due to aortic dissection resulting from...
Tag: Marfan Foundation
I’m a Thriver: Chuck Dodds Reflects on 20 Years Living with Loeys-Dietz Syndrome After an Aortic Dissection
“I felt like Mike Tyson punched me in the chest. That’s the best way I can describe it,”...
Driving for DEFY Golf Tournament
2026 marks the 12th anniversary of the Driving for DEFY golf outing! Together, we have raised over...
Variants of Uncertain Significance: What a VUS Result Means for You and Your Family
A variant of uncertain significance (VUS) is a common genetic test result, but one that often...
More than 700 People Take Part in 2026 South Florida Walk for Victory
A bundled-up crowd took part in the South Florida Walk for Victory on Sunday, 2/1 at T.Y. Park in...
Comedy, Community, and Marfan Awareness: Liam Nelson on Netflix’s Star Search
Comedian Liam Nelson, who has been part of the Marfan Foundation family since his early teens,...
Remembering Raymond John Chevallier
With deep sadness, the Marfan Foundation announces the passing of Raymond Chevallier -...
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