31st Annual Memorial Walk-a-Thon
This is a memorial walk in memory of those who have passed due to Marfan syndrome and related...
Tag: Marfan
The Marfan Foundation’s Global Reach, Lifesaving Impact
From European fundraising marathons to major international meetings, we’re advancing...
Raise Marfan Syndrome Awareness, Save Lives with the #LarsonLove Challenge
Marfan Foundation calls on theater community to honor Jonathan Larson's legacy through social...
London Symposium: Living Better with Marfan, Loeys-Dietz, VEDS, and Stickler
Please join us for our Second International Symposium/London: Living Better with Marfan,...
NYC/Tristate Symposium: Living Better with Marfan, Loeys-Dietz, VEDS, & Stickler
The Marfan Foundation and Weill Cornell Medicine present an educational opportunity for...
Empowered Pain Relief Course
The Marfan Foundation is pleased to offer Empowered Relief®️, a free 2.5-hour pain management...
Variants of Uncertain Significance: What a VUS Result Means for You and Your Family
A variant of uncertain significance (VUS) is a common genetic test result, but one that often...
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
