London Symposium: Living Better with Marfan, Loeys-Dietz, VEDS, and Stickler
Please join us for our Second International Symposium/London: Living Better with Marfan,...
Tag: Marfan
NYC/Tristate Symposium: Living Better with Marfan, Loeys-Dietz, VEDS, & Stickler
The Marfan Foundation and Weill Cornell Medicine present an educational opportunity for...
Empowered Pain Relief Course
The Marfan Foundation is pleased to offer Empowered Relief®️, a free 2.5-hour pain management...
Variants of Uncertain Significance: What a VUS Result Means for You and Your Family
A variant of uncertain significance (VUS) is a common genetic test result, but one that often...
New Book “Making Rent” Aims in Part to Raise Awareness of Marfan Syndrome
Broadway pioneer, musical director of Rent, author of new book, Making Rent, and friend of...
Hello, My Name is Jeanette: “A family diagnosis is a warning and an opportunity to save lives.”
Jeanette shares her first-person experiences in this post. Please note: this story discusses loss...
Honoring Lucas: A Family’s Mission to Raise Loeys-Dietz Syndrome Awareness
Note: This story discusses loss of a young person’s life due to a genetic aortic...
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