Honoring Lucas: A Family’s Mission to Raise Loeys-Dietz Syndrome Awareness
Note: This story discusses loss of a young person’s life due to a genetic aortic...
Tag: Marfan
Comedy, Community, and Marfan Awareness: Liam Nelson on Netflix’s Star Search
Comedian Liam Nelson, who has been part of the Marfan Foundation family since his early teens,...
Op-Ed: As We Remember Jonathan Larson, We Urge Everyone to Know the Signs and Save Lives
Updated May 2026: To support Marfan syndrome awareness, learn the signs, and...
How to Read a Genetic Testing Report
How to Read a Genetic Testing Report: A Practical Guide for Individuals and Families Join the...
Aortic Emergencies: Webinar for Aussies and Kiwis
Please join us for a webinar on aortic emergencies that is geared toward people living in...
The Northern Illinois Chapter’s Annual Chocolate Fundraiser
February is Marfan Awareness Month! Let's come together for our Chili and Chocolate Social...
Walk For Victory – Michigan
Join the Walk for Victory movement! Together, we celebrate community! Meet and reconnect...
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