Tag: Marfan

Comedy, Community, and Marfan Awareness: Liam Nelson on Netflix’s Star Search

Comedian Liam Nelson, who has been part of the Marfan Foundation family since his early teens,...

Announcements January 26, 2026January 26, 2026

Announcements, Awareness, News January 25, 2026May 17, 2026

Op-Ed: As We Remember Jonathan Larson, We Urge Everyone to Know the Signs and Save Lives

Updated May 2026: To support Marfan syndrome awareness, learn the signs, and...

January 23, 2026March 4, 2026

How to Read a Genetic Testing Report

How to Read a Genetic Testing Report: A Practical Guide for Individuals and Families Join the...

January 23, 2026February 27, 2026

Aortic Emergencies: Webinar for Aussies and Kiwis

Please join us for a webinar on aortic emergencies that is geared toward people living in...

January 16, 2026January 16, 2026

The Northern Illinois Chapter’s Annual Chocolate Fundraiser

February is Marfan Awareness Month! Let's come together for our Chili and Chocolate Social...

January 12, 2026January 12, 2026

Walk For Victory – Michigan

Join the Walk for Victory movement! Together, we celebrate community! Meet and reconnect...

December 18, 2025December 18, 2025

A Lunch with Heart Palm Beach

We are delighted to present A Lunch with Heart Palm Beach, a sophisticated new addition to The...

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