Hello, My Name is Jeanette: “A family diagnosis is a warning and an opportunity to save lives.”
Jeanette shares her first-person experiences in this post. Please note: this story discusses loss...
Tag: Awareness
The Jonathan Larson Project Comes to the Orpheum Theater, NYC
The Jonathan Larson Project is a new musical that celebrates the dozens of unheard songs,...
“Together, We Are Stronger”: Foundation & Marfan Europe Network Align for Awareness
"Together, we are stronger!" Marfan Europe Network (M.E.N.) and Contactgroep Marfan...
VEDS Teams are Historic Top 3 at 2024 Tampa Walk for Victory
For the first time in The Marfan Foundation's Walk for Victory (WFV) history, the top three...
Submit Videos: #marfanrealreels
Marfan Awareness Month 2024 is just around the corner in February. This year, we want to tell your...
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