Know the Signs, Fight for Victory

Submit Videos: #marfanrealreels

Marfan Awareness Month 2024 is just around the corner in February. This year, we want to tell your stories, your way! That’s why we’re asking the Marfan community to submit short videos about your “real” by January 09, 2024.

The videos can be anything that you’d like to share with the world in order to spread awareness: from the daily routine, to the funny, to the super-serious, to the tougher moments, to the things that make you proud, to the moments that bring you joy!

Videos should ideally be about a minute in length, but no longer than 90 seconds (lengths which will make them optimal for us to share across social media). We’ll share as many videos as we can throughout the month.

The world is waiting to hear YOUR story, your way!

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The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.

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