The Marfan Foundation’s Global Reach, Lifesaving Impact
From European fundraising marathons to major international meetings, we’re advancing...
Tag: Loeys-Dietz
Rescheduled LDS Connect International
Please Note: Due to Memorial Day (US), this group will meet on Thursday, May 28, 2026, at 2 pm...
London Symposium: Living Better with Marfan, Loeys-Dietz, VEDS, and Stickler
Due to overwhelming response and due to room safety capacity limits, we must cap registration...
NYC/Tristate Symposium: Living Better with Marfan, Loeys-Dietz, VEDS, & Stickler
The Marfan Foundation and Weill Cornell Medicine present an educational opportunity for...
Empowered Pain Relief Course
The Marfan Foundation is pleased to offer Empowered Relief®️, a free 2.5-hour pain management...
Variants of Uncertain Significance: What a VUS Result Means for You and Your Family
A variant of uncertain significance (VUS) is a common genetic test result, but one that often...
Canadian and U.S. Loeys-Dietz Syndrome Organizations Team Up to Help People Living with Rare Condition Find Community
First-ever joint virtual event to share personal perspectives Montreal, Quebec | Port...
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