Tag: VEDS

QUINTA CUMBRE ANUAL EN ESPAÑOL

Invitamos a pacientes y sus familias a unirse a nosotros en un día educativo sobre el síndrome...

November 13, 2025November 13, 2025

Awareness, Education, Events News, News November 13, 2025November 13, 2025

Cincinnati Regional Symposium Brings Experts and Families Together

On October 25, the Marfan Foundation and Cincinnati Children’s Hospital Medical...

Announcements, News November 12, 2025November 14, 2025

New AI-Powered Marfan Foundation Community Companion enables 24/7 Q&A

Custom GPT provides on-demand answers The Marfan Foundation is pleased to announce the...

October 31, 2025October 31, 2025

Memorable Moments Luncheon

The Memorable Moments Luncheon is a special event designed to highlight and celebrate significant...

October 31, 2025October 31, 2025

Walk For Victory – Pacific Northwest (Seattle)

Join the Walk for Victory movement! Together, we celebrate community! Meet and reconnect...

October 29, 2025October 30, 2025

Music and Mindfulness: Supporting Well-Being for Individuals Living with Aortic and Vascular Conditions through Music Therapy

In this interactive webinar, music therapist and mindfulness practitioner Katelyn “Katey”...

October 24, 2025October 24, 2025

Walk For Victory – Nashville

Join the Walk for Victory movement! Together, we celebrate community! Meet and reconnect...

Together, We Can Know the Signs
and Fight for Victory

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Know the signs. Fight for victory.

Join us in the fight for victory over Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions. Help us create a world in which everyone with these conditions can live their best life.

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Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory