Join us July 10-13 for The Marfan Foundation’s 40th Conference in Atlanta
Free Health Screenings | Latest Research Updates | Connect with Community
The Marfan Foundation’s 40th Conference
-
00
days
-
00
hours
-
00
minutes
-
00
seconds
The Marfan Foundation drives research, education, and support
– and builds community – to improve outcomes, save lives, and empower all people to thrive
who are living with Marfan, Loeys-Dietz, Vascular Elhers-Danlos syndromes
and related genetic aortic and vascular conditions.
Together, We Can Know the Signs
and Fight for Victory
Stay Connected on Social Media
Latest Research and Updates
The Marfan Foundation is the primary source for up-to-date and trustworthy information for patients and family members as well as healthcare providers and researchers. If you or someone you love has Marfan syndrome or a related conditions, we offer easy-to-understand materials to help you on your medical journey.
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
Stories of Hope
-
Call Her Wonder Woman: Percussionist Bella Sera Rocks On!
When Bella Sera was growing up in Houston, Texas, she was tired of other kids calling her derogatory names due to her Marfan-syndrome-related tall stature, so she told them to call her “an Amazon” instead.“If you’re going to call…
-
“A Better Perspective and Stronger Determination”: Justice Adrienne W. Albrecht’s Life with a “Marfan Body”
Adrienne W. Albrecht says she learned to read with her nose “practically touching the book.” “My eyes were so loose when I was born, they told my mother not to let me have any serious falls," said Albrecht. After a…
-
Leaving home for the first time and living with Marfan: “I have truly discovered the power and strength that lives within me.”
Guest blogger Coley Jackson, 21, of Raleigh, NC is a current student at James Madison University. She is a psychology major and a criminal justice minor working towards graduate school and a PhD. She has hopes to be an advocate for Marfan…
Upcoming Events
