The Marfan Foundation is a nonprofit organization that saves and improves lives while creating a community for all individuals with genetic aortic and vascular conditions, including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes.
Together, We Can Know the Signs
and Fight for Victory
Latest Research and Updates
The Marfan Foundation is the primary source for up-to-date and trustworthy information for patients and family members as well as healthcare providers and researchers. If you or someone you love has Marfan syndrome or a related conditions, we offer easy-to-understand materials to help you on your medical journey.
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
Stories of Hope
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Call Her Wonder Woman: Percussionist Bella Sera Rocks On!
When Bella Sera was growing up in Houston, Texas, she was tired of other kids calling her derogatory names due to her Marfan-syndrome-related tall stature, so she told them to call her “an Amazon” instead.“If you’re going to call…
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“A Better Perspective and Stronger Determination”: Justice Adrienne W. Albrecht’s Life with a “Marfan Body”
Adrienne W. Albrecht says she learned to read with her nose “practically touching the book.” “My eyes were so loose when I was born, they told my mother not to let me have any serious falls," said Albrecht. After a…
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Leaving home for the first time and living with Marfan: “I have truly discovered the power and strength that lives within me.”
Guest blogger Coley Jackson, 21, of Raleigh, NC is a current student at James Madison University. She is a psychology major and a criminal justice minor working towards graduate school and a PhD. She has hopes to be an advocate for Marfan…
Upcoming Events
Evening with Heart Scottsdale
Gainey Ranch Village Health Club and Spa
7477 East Doubletree Ranch Road, Scottsdale, AZ 85258
Camp Victory for Families: California 2024
Pali Retreat
30778 Highway 18, Running Springs, CA 92382
New Jersey Regional Symposium: Living Better with Marfan, Loeys-Dietz, and VEDS
Morristown Medical Center (Malcolm Forbes Auditorium – Kahn Level B)
100 Madison Avenue, Morristown, NJ
