Explore Marfan.org, the primary hub for patient education on Marfan syndrome, now accessible in more than 25 languages. The Marfan Foundation is dedicated to providing vital information globally, ensuring individuals worldwide can access reliable, up-to-date resources.
Our website is now available in the following additional languages: Afrikaans, Arabic, Bengali, Catalan, Chinese, Danish, Esperanto, Filipino, Hebrew, Latvian, Norwegian, Polish, Russian, Slovak, Slovenian, Turkish, and Ukrainian. These languages complement the existing 11 options, making Marfan.org even more inclusive than ever before.
The accessible languages include Spanish, Italian, German, French, Dutch, Swedish, Portuguese, Suomi, Mandarin, Japanese, and Hindi. This expansion is a significant step in supporting our international community, providing a sense of belonging and connection for individuals facing similar challenges.
Ance Baura, a Marfan advocate from Latvia, highlights the significance of sharing vital information widely. “Accessing information in one’s own language is not just about comfort; it’s about fostering a greater sense of belonging,” said Baura. “Everyone deserves access to life-saving information readily available in their preferred language.”
Eileen Novins-Masciale, Chief Global Business Development Officer for the Foundation, emphasizes the importance of global accessibility for those with Marfan syndrome and other genetic conditions. “People worldwide rely on The Marfan Foundation for life-saving information, and increasing the availability of our website is a crucial part of our commitment to the international community.”
Key Features of Marfan.org:
- Resource Library: Easily navigate materials by conditions, format, audience, and language.
- Expanded Section: Explore conditions related to Marfan syndrome.
- Division Access: Conveniently reach the Foundation’s divisions, including The VEDS Movement, Loeys-Dietz Syndrome Foundation, and GenTAC Alliance.
In addition to the website, Marfan fact sheets are available in Spanish, Italian, French, and German.
Stay tuned for more multi-language programming in early 2024, including the Third Spanish Language Summit on January 20, 2024. Registration details coming soon.
“Accessing medical information about Marfan syndrome in Spanish isn’t just about understanding a condition; it’s about unlocking the power to navigate life’s challenges,” said Betsy Matarrita, of Costa Rica, who has Marfan and serves on the Foundation’s Spanish Language Planning Committee. “In the language of health, this knowledge becomes a lifeline, very much impacting and guiding individuals on their unique journeys.”
Join us in making a global impact! The Marfan Foundation is a nonprofit organization dedicated to saving lives and improving the quality of life for individuals with genetic aortic and vascular conditions, including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world where everyone with genetic aortic and vascular conditions can live their best life.
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.