Le persone affette da sindrome di Marfan spesso hanno problemi al cuore e ai vasi sanguigni, a volte anche molto gravi. La complicazione più comune riguarda l’aorta (il vaso sanguigno che porta il sangue dal cuore al resto dell’organismo). Possono essere interessate anche le valvole cardiache. Più raramente sono colpiti vasi sanguigni diversi dall’aorta. È importante arrivare a una diagnosi precoce e accurata per poter individuare e gestire i problemi medici del cuore e dei vasi sanguigni prima che si trasformino in emergenze potenzialmente letali.
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Need-to-Know Information for the Teacher
Marfan syndrome is a life-threatening genetic disorder that causes some physical problems that can interfere with a student’s ability to perform in the classroom without modifications. These physical limitations cause many students living with the disorder to feel isolated and alone. We hope this guide enables educators to: Understand the basics of Marfan syndrome and […]
Tags: All, Marfan Syndrome , Caregivers, Patients & Families
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Family Planning and Pregnancy
Decisions about family planning can be difficult and very emotional when one of the prospective parents has a genetic disorder, such as Marfan syndrome. Before making any decisions, parents should understand the many options now available, as well as the potential risks to the child and the mother. A genetic counselor or the nurse in […]
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Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.