Mental Health with Marfan Syndrome (in a Post-2020 World)
When you have a lifelong condition like Marfan syndrome, your daily experience looks different...
Know the Signs, Fight for Victory
When you have a lifelong condition like Marfan syndrome, your daily experience looks different...
I was recently reading a book called How to Live a Good Life by Jonathan Fields (which I highly...
About six months ago, I made the decision to “retire” from my career as a full time nanny at...
As an individual with Marfan syndrome, you've most likely had that awkward encounter with a...
From a very young age, I understood that I was not like other kids. I knew that I had eyes that...