The Annual conference is now the E3 Conference – Live and in person
Registration is open. We hope to see you there! The Marfan Foundation hosts a conference that...
Author: Lauren Atherton
Teen Talk
The Marfan Foundation is hosting a virtual group for Teens ages 13-18 with Marfan syndrome, VEDS,...
Teen Game Night
Join us for a virtual game night! Teens ages 13-18 are invited to register to join in the fun....
VEDS Partners and Spouses
This group is for partners, spouses, and significant others of individuals diagnosed with VEDS to...
VEDS Parents
If you are a parent of a child with VEDS, we invite you to join other parents to discuss the...
VEDS Connect
1st Tuesday of each month at 8 pm Eastern Time If you have been diagnosed with VEDS, this group...
Coping with Grief and Loss
This group discussion is dedicated to the challenges our community faces when we lose our beloved...
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