Inaugural Memorable Moments Luncheon
The Memorable Moments Luncheon is a special event designed to highlight and celebrate significant...
Tag: Marfan
The Jonathan Larson Project Comes to the Orpheum Theater, NYC
The Jonathan Larson Project is a new musical that celebrates the dozens of unheard songs,...
“Together, We Are Stronger”: Foundation & Marfan Europe Network Align for Awareness
"Together, we are stronger!" Marfan Europe Network (M.E.N.) and Contactgroep Marfan...
Support for Parents/Guardians of Children with Early-Onset (Neonatal) Marfan Syndrome
Are you a parent or guardian of a child with early onset (previously called neonatal or infantile)...
Camp Victory for Families: Georgia 2025
Join us for this exciting opportunity to meet other families impacted by Marfan, VEDS,...
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