Tag: The Marfan Foundation

Simposio virtuale sulle sindromi di Marfan, Loeys-Dietz, VEDS e Stickler

Invitiamo i pazienti e le loro famiglie a partecipare a un simposio virtuale con presentazioni, in...

February 9, 2026February 20, 2026

Awareness, News February 1, 2026February 2, 2026

Honoring Lucas: A Family’s Mission to Raise Loeys-Dietz Syndrome Awareness

Note: This story discusses loss of a young person’s life due to a genetic aortic...

January 16, 2026January 16, 2026

The Northern Illinois Chapter’s Annual Chocolate Fundraiser

February is Marfan Awareness Month! Let's come together for our Chili and Chocolate Social...

January 12, 2026January 12, 2026

Walk For Victory – Michigan

Join the Walk for Victory movement! Together, we celebrate community! Meet and reconnect...

December 18, 2025December 18, 2025

A Lunch with Heart Palm Beach

We are delighted to present A Lunch with Heart Palm Beach, a sophisticated new addition to The...

December 18, 2025April 6, 2026

Camp Victory for Kids: California 2026

Don’t miss out on this opportunity for your child/children, ages 7-16, to attend Camp Victory...

December 18, 2025April 6, 2026

Camp Victory for Kids: Georgia 2026

Don’t miss out on this opportunity for your child/children, ages 7-16, to attend Camp Victory...

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