Know the Signs, Fight for Victory

A Statement from The Marfan Foundation

To our Marfan and related conditions community:

It has recently come to our attention that certain accusations of sexual misconduct have been made against Austin Carlile. We want you to know that we are aware of these allegations, and that we strongly condemn sexual violence and sexual harassment in any and all forms. Until these allegations are resolved, Austin Carlile will no longer be invited to participate at Foundation events or our Annual Conference.

We are firmly committed to equity and access for all people. Sexual predators have no place in our community.

The Marfan Foundation


The Marfan Foundation saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes.


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