Know the Signs, Fight for Victory

Registration is Now Open for the Second International Patient Meeting

What’s New in Genetic Aortic and Vascular Conditions, Set for August 28, 2022, in Paris

Registration is now open for the second international patient symposium on genetic aortic and vascular conditions, which is set for Sunday, August 28, 2022, at Le Méridien Etoile in Paris, France. Registration is free but required.

Please register here.

Confirmed speakers include Dr. Juan Bowen, Mayo Clinic, Dr. Alan Braverman, Washington University in St. Louis, Dr. Scott LeMaire, and Baylor-St. Luke’s, Dr. Hal Dietz, Johns Hopkins, Dr. Kim Eagle, University of Michigan, Dr. Bart Loeys, University of Antwerp (Belgium), and Dr. Shaine Morris, Texas Children’s Hospital.

Medical presentations will cover diagnosis, medical and surgical treatments, and genetics related to Marfan, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions. Attendees will have an opportunity to network with the presenters and with each other.

The patient meeting precedes Science in Paris, four days of scientific meetings on Marfan, Loeys-Dietz, VEDS, and other genetic aortic conditions.

The Marfan Foundation’s Outreach to the International Community

The Marfan Foundation, a founding member of the International Federation of Marfan Syndrome Organizations in 1992, has always been committed to the education and support of our global community of people living with Marfan and related conditions. Recent highlights include:

  • First Spanish Symposium on Marfan and Related Conditions in January 2022, which attracted 366 registrants from 23 countries. Additional Spanish programming is planned for later this year.
  • First Virtual Conference, a four-day event in July 2021, attracted 1,800 people from more than 50 countries.
  • New Marfan fact sheets in German, French, and Italian launched in 2021 adding to the resources we already offer in English and Spanish.
  • The new website, launched in the Fall of 2021, is accessible in 11 languages.
  • International E3 Summit: Educating, Empowering, and Enriching Our Community, a three-week virtual event held in August-September 2020, featured 70 presentations in seven languages and attracted 3,000 registrants from more than 75 countries.
  • In 2019, the Foundation became the leader of Aortic Disease Awareness Week, an annual international initiative that drives awareness and promotes medical education internationally.

About The Marfan Foundation

The Marfan Foundation saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. To learn more, please visit marfan.org.

If you have any questions about the International Patient Meeting, please contact Eileen Masciale, chief program officer, emasciale@marfan.org.


The Marfan Foundation saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes.


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