“Together we are stronger!”
Marfan Europe Network (M.E.N.) and Contactgroep Marfan Nederland’s Inka Wijnands’s statement sums up the reason why the Marfan Foundation is teaming up with M.E.N. this month to share co-branded facts about Marfan syndrome, translated into multiple languages. Together we are stronger.
“Across Europe, so many organizations are working hard to raise awareness about Marfan syndrome every single day,” said Foundation Chief Global Business Development Officer Eileen Novins. “We are so proud to join with M.E.N. to ensure that together we will reach even more people with life-saving, life-enhancing awareness messages during February. When we work together, we can achieve so much more on behalf of the communities we serve around the world.”
The Foundation and M.E.N. will jointly offer facts in English, Spanish, Dutch, French, German, and Italian during February 2025. Likewise, marfan.org is available in more than 25 languages. Use the translate drop-down menu at the top right of any page to select the language in which you wish to read the site.
Jan Heinzle of M.E.N. and Marfan Initiative Österreich (Austria’s Marfan non-profit) said, “We are excited to partner with the Marfan Foundation. It’s an important step to connect people globally. The Foundation does wonderful work in America. Working together, we can learn from their experiences and raise even more awareness all over the world. By connecting our communities, we can reach more people and raise even more awareness.”
The joint effort leverages the Foundation’s digital reach with the goal of helping all of the involved organizations increase their ability to spread awareness. During Marfan Awareness Month 2024, the Foundation reached 450,000 people with facts, resources, and first-person stories. So far in 2025, our social media posts have reached 210,000 people in just the first 10 days of Awareness Month.
Diana Maas, also of M.E.N. and Contactgroep Marfan Nederland looks forward to our “impact in unity” this month.
You can follow Marfan Europe Network on Facebook. Learn more about Marfan Awareness month at https://marfan.org/marfan-awareness-month/
For media inquiries, email brandcomms@marfan.org
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.