Das Marfan-Syndrom ist eine lebensbedrohliche genetisch bedingte Erkrankung des Bindegewebes. Wenn die Anzeichen des Marfan-Syndroms richtig erkannt werden, eine korrekte Diagnose gestellt wird und die Erkrankung richtig behandelt wird, können Patienten mit Marfan-Syndrom ein langes und erfülltes Leben führen.
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Nervous System in Marfan Syndrome
The nervous system—the brain and spinal column—are surrounded by fluid contained in a membrane called the dura, which is primarily made up of connective tissue. The enlargement of this membrane (and sometimes the presence of cysts) is referred to as dural ectasia. Dural ectasia is present in more than 60 percent of people who have […]
Tags: Marfan Syndrome , Patients & Families
Walk for Victory Registration Guide
Register for your Walk for Victory by following the simple steps in our registration guide. Whether you join as an individual or create a team, we look forward to seeing you soon!
Tags: All , Patients & Families
Know the signs.
Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.