The Marfan Foundation is pleased to welcome Stephanie Amdur-Clark, our new Help and Resource Center Director. Stephanie will succeed Jan Lynch who will be moving to a part-time role to spend more time with her loved ones while still providing her outstanding counsel to our community.
“I am very excited to start working with the Marfan Foundation and to advocate and provide support for this community that means so much to myself and my family. I am looking forward to working with everyone on the team and to learning more about the incredible work that is being done by the Foundation,” said Stephanie.
Stephanie, a Pediatric Nurse Practitioner in Buffalo, NY, has worked in several different departments, including gastroenterology, pediatric cardiac intensive care, nutrition, and hepatology. In addition, she has experience working in Boston Children’s Hospital, where she worked with physicians connected to the genetic aortic and vascular conditions community.
Not only has Stephanie worked with members of our community, her husband and her children live with Marfan syndrome.
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The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.