Author: Jan Lynch

Jan Lynch, MSN, RN, is the Foundation’s Director of the Help & Resource Center. She can be reached at 516-883-8712, ext. 126, or jlynch@marfan.org.

In 2018, Resolve to Practice Self-Care

When we wish others a healthy and happy new year, we do not say those words lightly. In many...

Quality of Life January 8, 2018February 24, 2021

Quality of Life December 11, 2017February 24, 2021

Tips To Help You Make the Most Out Of Your Doctor Visits

Spending some time in preparation for a doctor visit will help you get the most out of it and...

Diagnosis, Healthcare Management, Research April 28, 2017February 24, 2021

Q & A with Jan Lynch, MSN, RN: Director of Help & Resource Center

Jan Lynch, MSN, RN, joined The Marfan Foundation staff in April as the Director of the Help &...

Together, We are Fighting for Victory

View all Divisions

View Our science and treatment arm

Know the signs. Fight for victory.

Join us in the fight for victory over Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions. Help us create a world in which everyone with these conditions can live their best life.

Donate Now

Stay Connected on Social Media

Have a question? We can help.

Together, We are Fighting for Victory

Know the signs. Fight for victory.