Kendra, who lives in Phoenix, AZ, was diagnosed with Marfan syndrome as a child. She is an advocate for people with chronic illnesses, chronic pain, and disability. Find more of her writing by following her Instagram @kendrawesomeness.
Join us in the fight for victory over Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions. Help us create a world in which everyone with these conditions can live their best life.