Advocacy in Action: My Experience Lobbying for The Marfan Foundation on Capitol Hill
In June 2017, a midterm election had just occurred with the issue of pre-existing conditions and...
Know the Signs, Fight for Victory
In June 2017, a midterm election had just occurred with the issue of pre-existing conditions and...
Most people affected by Marfan syndrome experience a life-changing moment when they or a loved one...