Know the Signs, Fight for Victory
Our Professional Advisory Board has issued an updated statement regarding COVID-19 vaccinations for both adults and children with Marfan syndrome and related conditions. This guidance reflects the latest research and clinical expertise to help individuals and families make informed decisions about vaccination and ongoing health protection.
What are the most common gastrointestinal issues in people with connective tissue conditions? The answer to this question and more can be found in this document from Tony Guerrerio, MD, PhD.
When you’re recovering from surgery or having a pain flare-up, people often ask how they can help. But when you’re not feeling well, it’s hard to know what to say. These worksheets are designed for adults, teens, and kids to communicate the best ways to support them through medical events.
Understanding your genetic test results for conditions like Marfan, Loeys-Dietz, or VEDS can be challenging. Here’s a simple Q&A to help make sense of what your results may mean and what you might consider doing next.
While most people with chronic conditions focus on their physical health, mental health is often ignored. Having a connective tissue condition isn’t easy, so give your mind the TLC it needs.
People with Marfan syndrome are at up to 250 times greater risk of aortic dissection (a tear or rupture between layers of the aortic wall) than the general population. That’s why it’s important to know the signs of an aortic dissection and what to do. Symptoms of aortic aneurysm may be related to the location, […]
Ihre Familienanamnese ist eine Sammlung von Gesundheitsinformationen über Sie und Ihre nahen Verwandten. Es enthält Informationen über Störungen, Krankheiten und Gesundheitsprobleme, die für Sie und Ihre Kinder jetzt oder in Zukunft gefährdet sein könnten. Am wichtigsten ist, dass es auch Ihren Ärzten helfen kann, wenn sie überlegen, ob Sie ein Marfan-Syndrom oder eine verwandte Erkrankung haben oder nicht.
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