Tag: Loeys-Dietz

Taking Care of Your Aorta: An Update for Aussie and Kiwi Patients and Families

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April 1, 2025April 1, 2025

February 20, 2025February 23, 2025

Inaugural Memorable Moments Luncheon

The Memorable Moments Luncheon is a special event designed to highlight and celebrate significant...

February 5, 2025February 18, 2025

Northern California Regional Symposium: Living Better with Marfan, Loeys-Dietz, and VEDS

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January 22, 2025January 22, 2025

Your Eyes and Stickler Syndrome: What You Need to Know

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December 12, 2024March 12, 2025

Camp Victory for Families: Georgia 2025

Join us for this exciting opportunity to meet other families impacted by Marfan, VEDS,...

December 12, 2024March 13, 2025

Camp Victory for Kids: Georgia 2025

Don’t miss out on this opportunity for your child/children, ages 7-16, to attend Camp Victory...

December 12, 2024March 13, 2025

Camp Victory for Kids: California 2025

Don’t miss out on this opportunity for your child/children, ages 7-16, to attend Camp Victory...

Together, We Can Know the Signs
and Fight for Victory

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Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory