Op-Ed: STAT Action Saved My Life, It Could Save Yours
At 38, I nearly lost everything in an instant. Marfan Foundation Board member and...
Author: The Marfan Foundation
The Marfan Foundation drives research, education and support – and builds community – to improve outcomes, save lives and empower all people to thrive who are living with Marfan, Loeys-Dietz, Vascular Ehlers-Danlos syndromes, and related genetic aortic and vascular conditions.
Marfan Foundation Issues Updated “Know the Signs” Infographic Ahead of Aortic Dissection Awareness Month in September
In September, the Marfan Foundation shines a light on the risk of fatal aortic dissection - a...
Nuestro camino con el Síndrome Marfan
Mi nombre es Mary de Arias de nacionalidad peruana, radico junto a mi familia en...
Community Member, Physical Therapist
Diane Rich Shares Her 2025 Conference Experience Diane Rich, PT, DPT offers her first-person...
“I Just Feel at Home Here”: The Marfan Foundation’s 40th Conference Empowers Attendees to #KnowConnectThrive
From July 10 to 13, attendees from 44 states and 10 countries gathered in Atlanta for the...
600+ Set to Gather for Marfan Foundation’s 40th Conference
Record Number of Scholarships Offered Thanks to Community Support ATLANTA, GA, July 10-13...
“An emotional jamboree…” One parent’s perspective on Marfan syndrome
Monica shares her personal perspective regarding wellbeing and navigating her "parenting journey"...
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
