Camp Victory 2024 Brings Smiles
Six years ago, the Foundation began offering Camp Victory to provide a fun, safe environment where...
Category: Announcements
Marfan Awareness Month 2024 Wins PR Daily Awards for Social Media & Engagement, Innovation Mention
Thanks to the heartfelt and diverse ways in which our community members shared their everyday...
The Marfan Foundation announces alignment with global Think Aorta campaign to amplify key life-saving messages, starting with Aortic Dissection Awareness Week 2024 (9/19 – 9/26)
Aims to save more lives through rapid ID of symptoms and urgent CT scan diagnoses The...
Foundation presents first-ever London Symposium: Living Better with Marfan, Loeys-Dietz, & VEDS
Co-presented by our friends from Annabelle's Challenge, Marfan Trust, The Aortic Dissection...
Foundation Volunteers Convene Expert Group that Releases First-Ever AHA Pediatric Aortopathy Scientific Statement
August 12th, 2024, became a historic day for the genetic aortic and vascular conditions...
Welcome Nurse Stephanie
The Marfan Foundation is pleased to welcome Stephanie Amdur-Clark, our new Help and Resource...
StuffThatWorks and The Marfan Foundation to Engage in Pilot Program
Joint efforts will form best practices for non-profit health organizations to leverage patient...
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