New Book “Making Rent” Aims in Part to Raise Awareness of Marfan Syndrome
Broadway pioneer, musical director of Rent, author of new book, Making Rent, and friend of...
Tag: Aortic Dissection
Hello, My Name is Jeanette: “A family diagnosis is a warning and an opportunity to save lives.”
Jeanette shares her first-person experiences in this post. Please note: this story discusses loss...
Op-Ed: As We Remember Jonathan Larson, We Urge Everyone to Know the Signs and Save Lives
30 years ago today, his loved ones, the theater community, and the world...
Op-Ed: STAT Action Saved My Life, It Could Save Yours
At 38, I nearly lost everything in an instant. Marfan Foundation Board member and...
Top North American aortic-awareness organizations will stand together to save lives during Aortic Dissection Awareness Week (September 14 – 20, 2025)
Goal: Raising awareness of STAT: Suspect, Time is Critical, Aortic Imaging, Talk About...
Foundation’s Everest Award Funds Research for Potential New Aortic Dissection Prevention and Treatment
The Marfan Foundation has granted its second Everest Award to a team of researchers led by Julie...
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