By The Marfan Foundation

The Marfan Foundation is holding its Lobby Day on Capitol Hill on June 20. As a Marfan syndrome and related conditions advocate, you are invited to participate as we urge legislators to support responsible healthcare reform. We can make a difference as the American Health Care Act, which was approved by the House of Representatives, still needs to go through the Senate.

The patient community must rally around specific recommendations and work to inform legislators about the value and importance of advancing proposals that incorporate issues that are critical to patients and their families.

Please join us on Capitol Hill on June 19 and June 20. Below is a preliminary timeline of events. Travel and hotel reimbursement for this event are not available. If you plan to join us, please rsvp to jgrima@marfan.org by June 1, 2017, and provide your full name and address.

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Schedule of Events:

Monday, June 19

6:00 PM – 8:00 PM

• Participant Dinner and Advocacy Training Session
  The Monocle Restaurant
  107 D St., NEW, Washington, DC 20002
• Legislative Issues Review
  Dane Christiansen, Health and Medicine Council of Washington
• How to Make and Effective Congressional Visit
  Dale P. Dirks, Health and Medicine Council of Washington

Tuesday, June 20

9:30 AM – 10:00 AM

• Meet at the Health and Medicine Councel of Washington
  507 Capitol Court, N.E., Suite 200
  Washington, D.C. 20002

10:00 AM – 10:30 AM

• Group photo on the Steps of the Capitol

10:30 AM – 12:30 AM

• Senate Congressional Meetings

1:00 PM – 2:00 PM

• Lunch
  Senate Buffet, Basement, Dirksen Senate Office Building

2:00 PM – 4:00 PM

• House Congressional Meetings

4:00 PM – 5:00 PM

• Optional Debriefing Session
  Longworth Cafeteria, Basement, Longworth House Office Building

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