Meet Monty: New Resource Aims to Help More Teachers Understand Marfan Syndrome in the Classroom
Students living with Marfan syndrome are more than their diagnoses - they are vibrant young...
Category: Awareness
Marfan and Loeys-Dietz Awareness Months Reach Nearly 1.2 Million People with Life-Saving Awareness, Raise Essential Funds
The results are in: during Marfan and Loeys-Dietz Awareness Months 2026, the...
Raise Marfan Syndrome Awareness, Save Lives with the #LarsonLove Challenge
Marfan Foundation calls on theater community to honor Jonathan Larson's legacy through social...
Connor Metz Legacy Drives University of San Francisco Loeys-Dietz Syndrome Training for 1,500 Nursing Students
13-year-old Connor Metz tragically lost his life due to aortic dissection resulting from...
I’m a Thriver: Chuck Dodds Reflects on 20 Years Living with Loeys-Dietz Syndrome After an Aortic Dissection
“I felt like Mike Tyson punched me in the chest. That’s the best way I can describe it,”...
Hello, My Name is Jeanette: “A family diagnosis is a warning and an opportunity to save lives.”
Jeanette shares her first-person experiences in this post. Please note: this story discusses loss...
Honoring Lucas: A Family’s Mission to Raise Loeys-Dietz Syndrome Awareness
Note: This story discusses loss of a young person’s life due to a genetic aortic...
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