Hello, My Name is Jeanette: “A family diagnosis is a warning and an opportunity to save lives.”
Jeanette shares her first-person experiences in this post. Please note: this story discusses loss...
Category: Awareness
Honoring Lucas: A Family’s Mission to Raise Loeys-Dietz Syndrome Awareness
Note: This story discusses loss of a young person’s life due to a genetic aortic...
Op-Ed: As We Remember Jonathan Larson, We Urge Everyone to Know the Signs and Save Lives
30 years ago today, his loved ones, the theater community, and the world...
Cincinnati Regional Symposium Brings Experts and Families Together
On October 25, the Marfan Foundation and Cincinnati Children’s Hospital Medical...
2025 Marfan and Loeys-Dietz Awareness Months Reach 990K People
Thanks to the outstanding support of our community members, Marfan Awareness Month and...
The Jonathan Larson Project Comes to the Orpheum Theater, NYC
The Jonathan Larson Project is a new musical that celebrates the dozens of unheard songs,...
Marfan Foundation: A May of Self-Care & Thanks During Mental Health Awareness Month 2024
During Mental Health Awareness Month (and every day!), we're here to help empower you to live your...
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