On October 6, 2022 we celebrated the 3rd birthday of The VEDS Movement and the power of our community!
This virtual event featured a silent auction of unique items, appearances from a few of our favorite people, and some surprises. Click the replay below to watch the fun and hear updates on the progress of The VEDS Movement, a panel on VEDS research, featuring Dr. Josephine Grima, and Dr. Shaine Morris, and powerful community stories of advocacy and success.
Thank you to all who supported the event and to our wonderful planning committee!
Thank you to our wonderful Birthday Bash committee members:
Roe Nania, Chair
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.