On October 6, 2022 we celebrated the 3rd birthday of The VEDS Movement and the power of our community!
This virtual event featured a silent auction of unique items, appearances from a few of our favorite people, and some surprises. Click the replay below to watch the fun and hear updates on the progress of The VEDS Movement, a panel on VEDS research, featuring Dr. Josephine Grima, and Dr. Shaine Morris, and powerful community stories of advocacy and success.
Thank you to all who supported the event and to our wonderful planning committee!
Thank you to our wonderful Birthday Bash committee members:
Roe Nania, Chair
Joy Foote
Morgan Jozwiak
Mary Bailey
Kristi Posival
Dominick Corso
The Marfan Foundation drives research, education and support – and builds community – to improve outcomes, save lives and empower all people to thrive who are living with Marfan, Loeys-Dietz, Vascular Ehlers-Danlos syndromes, and related genetic aortic and vascular conditions.