The Foundation’s schedule of events during fall and early winter offers so many chances to connect with community, both in-person and virtually. There’s something for everyone, and opportunities to be together across geography.
Upcoming Events That Benefit the Foundation’s Mission:
October 24: Uncorked, Metropolitan Club, New York, NY, 6 p.m. Buy tickets here!
Come together to support the life-saving mission of The Marfan Foundation and build a brighter future for those affected by Marfan syndrome, Loeys-Dietz syndrome, VEDS, and related genetic aortic and vascular conditions. Hosted by Board Member Jim Prutow and our event committee, guests will enjoy a tasting of 5 unique wines led by Master Sommelier Gambrelle Snyder, light bites, great company, and more!
November 7: Evening with Heart, Scottsdale, AZ, 6 – 9 p.m. Buy tickets here!
This exciting event benefitting our mission will feature something for everyone! The evening will include a pickleball tournament, pickleball clinic, spectator and cheering section, drinks, light bites, awards, prizes and more!
Upcoming In-Person Educational Events:
November 2: New England Symposium: Living Better with Marfan, Loeys-Dietz, and VEDS, Burlington, MA
Register here!
The Marfan Foundation and the Lahey Hospital & Medical Center welcome you to attend. The symposium is for individuals affected by Marfan, LDS, VEDS, Stickler syndrome and their families. Presentations will focus on both adults and children. You will have an opportunity to increase your understanding of your diagnosis and treatment; get your questions answered by local experts; and learn more about how to improve your quality of life. In addition, the symposium features a Creating Connections luncheon so that attendees can network with others living with genetic aortic and vascular conditions. Experts from Lahey and Boston Children’s will take part, as will retired pediatrician Dr. Ron Lacro — a member of the Foundation’s Professional Advisory Board.
November 9: New Jersey Symposium: Living Better with Marfan, Loeys-Dietz, and VEDS, Morristown, NJ
Register here!
The New Jersey symposium offers a similar opportunity to hear from local experts and connect with community. Hosted by the Foundation and Morristown Medical Center, part of Atlantic Health System, come out and meet Dr. Van Boxtel — the surgeon who made headlines when he performed heart surgery on twin brother living with Marfan. We expect brothers Pablo and Julio Delcid to take part in the event.
Upcoming Free Webinars/Virtual Events – Register at the links below (advance registration required)
October 21st, 7:30 p.m.: VEDS Emergencies: Know When to Go and What to Say – Marfan Foundation
Empower yourself with vital knowledge from expert speakers so you can navigate VEDS-related emergencies confidently. Don’t miss this opportunity to learn life-saving strategies and improve your interactions with medical professionals during critical situations.
November 4, 7 p.m.: Overview ⋮ Navigating the Diagnosis and Management of Pediatric Aortopathy
Co-authors Dr. Shaine A. Morris of Texas Children’s Hospital and Dr. Ronald Lacro of Boston Children’s Hospital discuss key takeaways from the American Heart Association’s (AHA’s) scientific statement on the cardiovascular management of aortopathy in children, including how often children should undergo imaging, which medications should be considered and when, new guidance around physical activity, and considerations for preventive aortic root replacement surgery.
November 13, 7 p.m. Overview: Integrating Mental Health Screening into Aortopathy Care ⋮ The Marfan Foundation ⋮ Events
Join our GenTAC Alliance division for this interactive session designed for individuals affected by thoracic aortic aneurysms and dissections (TAD), as well as healthcare professionals involved in their care.
LAST CHANCE TO REGISTER – Puerto Rico In-Person Events on October 26th
For healthcare providers, 7-credit CME course conducted in English: 2024 CME Symposium for Physicians Coming to Puerto Rico in October – Marfan Foundation
For community members, symposium conducted in Spanish: La inscripción ya está abierta para el Simposio Regional en Puerto Rico: Mejorando Su Vida con Marfan, Loeys-Deitz y VEDS – Marfan Foundation
LOOKING AHEAD – November 22, 2024 Foundation Benefit – Houston Heartworks Gala
2024 Houston HeartWorks Gala – Buy Tickets
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.