Top North American aortic-awareness organizations will stand together to save lives during Aortic Dissection Awareness Week (September 14 – 20, 2025)
Goal: Raising awareness of STAT: Suspect, Time is Critical, Aortic Imaging, Talk About...
Author: April Dawn Shinske
April Dawn Shinske is the Chief Communications and Marketing Officer for The Marfan Foundation. She is proud to lead a stellar integrated marketing and communications team and honored to help tell the amazing stories of our community members.
Experts Look Forward to the Marfan Foundation’s July 2025 Atlanta Conference
The Marfan Foundation, in association with Children’s Healthcare of Atlanta, Emory...
Patrick’s 65+ Years with Marfan Syndrome: “I’ve had a normal life for the most part…”
Patrick Maguire is retired now and we are so grateful that he spends a lot of his free time...
Leticia’s Pregnancy Story: “I know how to take care of myself…”
Decisions around family planning, pregnancy, and related considerations are very personal. We...
The Jonathan Larson Project Comes to the Orpheum Theater, NYC
The Jonathan Larson Project is a new musical that celebrates the dozens of unheard songs,...
Moving Day Leads to VEDS Diagnosis, New Ways to Thrive
Maia Fleener wanted to get ready for living solo at college. So, when her family was making a...
Lineman Loses Life to Misdiagnosed Aortic Dissection, Saves Family Members
40-year-old Derrick Werner was doing his job as a lineman. He was in the bucket working on a...
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