Op-Ed: As We Remember Jonathan Larson, We Urge Everyone to Know the Signs and Save Lives
Updated May 2026: To support Marfan syndrome awareness, learn the signs, and...
Author: April Dawn Shinske
April Dawn Shinske is the Chief Communications and Marketing Officer for The Marfan Foundation. She is proud to lead a stellar integrated marketing and communications team and honored to help tell the amazing stories of our community members.
Got Questions? The Marfan Foundation Can Help!
Got Questions? The Marfan Foundation Can Help! Click here: Ask our Community...
Top North American aortic-awareness organizations will stand together to save lives during Aortic Dissection Awareness Week (September 14 – 20, 2025)
Goal: Raising awareness of STAT: Suspect, Time is Critical, Aortic Imaging, Talk About...
Experts Look Forward to the Marfan Foundation’s July 2025 Atlanta Conference
The Marfan Foundation, in association with Children’s Healthcare of Atlanta, Emory...
Patrick’s 65+ Years with Marfan Syndrome: “I’ve had a normal life for the most part…”
Patrick Maguire is retired now and we are so grateful that he spends a lot of his free time...
Leticia’s Pregnancy Story: “I know how to take care of myself…”
Decisions around family planning, pregnancy, and related considerations are very personal. We...
The Jonathan Larson Project Comes to the Orpheum Theater, NYC
The Jonathan Larson Project is a new musical that celebrates the dozens of unheard songs,...
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