Patrick’s 65+ Years with Marfan Syndrome: “I’ve had a normal life for the most part…”
Patrick Maguire is retired now and we are so grateful that he spends a lot of his free time...
Author: April Dawn Shinske
April Dawn Shinske is the Chief Communications and Marketing Officer for The Marfan Foundation. She is proud to lead a stellar integrated marketing and communications team and honored to help tell the amazing stories of our community members.
Leticia’s Pregnancy Story: “I know how to take care of myself…”
Decisions around family planning, pregnancy, and related considerations are very personal. We...
The Jonathan Larson Project Comes to the Orpheum Theater, NYC
The Jonathan Larson Project is a new musical that celebrates the dozens of unheard songs,...
Moving Day Leads to VEDS Diagnosis, New Ways to Thrive
Maia Fleener wanted to get ready for living solo at college. So, when her family was making a...
Lineman Loses Life to Misdiagnosed Aortic Dissection, Saves Family Members
40-year-old Derrick Werner was doing his job as a lineman. He was in the bucket working on a...
Life After a VEDS-Related Dissection: Chris Underwood’s Story
“Up until the dissection, I had no idea.” Chris Underwood’s mom had died of...
Natalie’s Legacy: Saving Other Families from Aortic Dissection Loss Due to Undiagnosed VEDS
CAUTION: This story focuses on a detailed account of fatal childhood aortic dissection; the...
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