Eight leading aortic-awareness organizations unite to amplify life-saving stories during Aortic Dissection Awareness Week 2026
Goal: Raising awareness through storytelling, education and collective action For Media...
Author: April Dawn Shinske
April Dawn Shinske is the Chief Communications and Marketing Officer for The Marfan Foundation. She is proud to lead a stellar integrated marketing and communications team and honored to help tell the amazing stories of our community members.
A Month of Gratitude & Self-Care 2026
During Mental Health Awareness Month, we're sharing some quick ideas for focusing on...
Coping With Grief & Loss
Coping with Grief & Loss – Losing Someone with a Genetic Aortic and Vascular...
Connor Metz Legacy Drives University of San Francisco Loeys-Dietz Syndrome Training for 1,500 Nursing Students
13-year-old Connor Metz tragically lost his life due to aortic dissection resulting from...
More than 700 People Take Part in 2026 South Florida Walk for Victory
A bundled-up crowd took part in the South Florida Walk for Victory on Sunday, 2/1 at T.Y. Park in...
Comedy, Community, and Marfan Awareness: Liam Nelson on Netflix’s Star Search
Comedian Liam Nelson, who has been part of the Marfan Foundation family since his early teens,...
Op-Ed: As We Remember Jonathan Larson, We Urge Everyone to Know the Signs and Save Lives
Updated May 2026: To support Marfan syndrome awareness, learn the signs, and...
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