Connor Metz Legacy Drives University of San Francisco Loeys-Dietz Syndrome Training for 1,500 Nursing Students
13-year-old Connor Metz tragically lost his life due to aortic dissection resulting from...
Author: April Dawn Shinske
April Dawn Shinske is the Chief Communications and Marketing Officer for The Marfan Foundation. She is proud to lead a stellar integrated marketing and communications team and honored to help tell the amazing stories of our community members.
More than 700 People Take Part in 2026 South Florida Walk for Victory
A bundled-up crowd took part in the South Florida Walk for Victory on Sunday, 2/1 at T.Y. Park in...
Comedy, Community, and Marfan Awareness: Liam Nelson on Netflix’s Star Search
Comedian Liam Nelson, who has been part of the Marfan Foundation family since his early teens,...
Op-Ed: As We Remember Jonathan Larson, We Urge Everyone to Know the Signs and Save Lives
30 years ago today, his loved ones, the theater community, and the world...
Got Questions? The Marfan Foundation Can Help!
Got Questions? The Marfan Foundation Can Help! Click here: Ask our Community...
Top North American aortic-awareness organizations will stand together to save lives during Aortic Dissection Awareness Week (September 14 – 20, 2025)
Goal: Raising awareness of STAT: Suspect, Time is Critical, Aortic Imaging, Talk About...
Experts Look Forward to the Marfan Foundation’s July 2025 Atlanta Conference
The Marfan Foundation, in association with Children’s Healthcare of Atlanta, Emory...
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