The Jonathan Larson Project Comes to the Orpheum Theater, NYC
The Jonathan Larson Project is a new musical that celebrates the dozens of unheard songs,...
Author: April Dawn Shinske
April Dawn Shinske is the Chief Communications and Marketing Officer for The Marfan Foundation. She is proud to lead a stellar integrated marketing and communications team and honored to help tell the amazing stories of our community members.
Moving Day Leads to VEDS Diagnosis, New Ways to Thrive
Maia Fleener wanted to get ready for living solo at college. So, when her family was making a...
Lineman Loses Life to Misdiagnosed Aortic Dissection, Saves Family Members
40-year-old Derrick Werner was doing his job as a lineman. He was in the bucket working on a...
Life After a VEDS-Related Dissection: Chris Underwood’s Story
“Up until the dissection, I had no idea.” Chris Underwood’s mom had died of...
Natalie’s Legacy: Saving Other Families from Aortic Dissection Loss Due to Undiagnosed VEDS
CAUTION: This story focuses on a detailed account of fatal childhood aortic dissection; the...
“A Better Perspective and Stronger Determination”: Justice Adrienne W. Albrecht’s Life with a “Marfan Body”
Adrienne W. Albrecht says she learned to read with her nose “practically touching the...
Call Her Wonder Woman: Percussionist Bella Sera Rocks On!
When Bella Sera was growing up in Houston, Texas, she was tired of other kids calling her...
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