Heartworks St. Louis Honorees Announced
The Marfan Foundation will honor Scott Luhmann, MD, Professor of Orthopaedic Surgery, Washington...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
The Easiest Resolution: Taking Control of Your Health Journey in 2019
The ball has dropped, and we rang in the New Year. Ready or not, 2019 is here. As we slide back...
The Marfan Foundation Takes Leadership Role in Global Aortic Disease Awareness Day
The Marfan Foundation is proud to announce that it is partnering with Timo Soderlund, of Sweden,...
Empowerment Means Saying Goodbye to the Sidelines
Keith has never been terribly outgoing. He’s taller than other kids and wears thick glasses. He...
Peace Through Connection
Connection is at the core of the Snyder family’s resilience. Through a combination of close...
Lifesaving Education
There are few things stronger than a mother’s intuition. The strength of this “knowing” is...
We Found Our Family
For most people, family is the first group of people we know and trust. Newborn babies know their...
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