The Marfan Foundation Announces Collaboration with American Heart Association on Pilot of My Research Legacy™
The Marfan Foundation announced today its collaboration with the American Heart Association (AHA)...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
Now Available: Expanded Fact Sheet on Heart & Blood Vessels in Marfan Syndrome
The Marfan Foundation’s fact sheet about the heart and blood vessels in Marfan syndrome has been...
The Marfan Foundation Presents Awards at Annual Conference
In recognition of the significant contributions of volunteers throughout the country, The Marfan...
The Marfan Foundation Brings its 32nd Annual Conference to Rochester, MN, August 4-7, 2016
The Marfan Foundation will hold its 32nd Annual Conference in Rochester, MN, on August 4-7. The...
The Marfan Foundation Earns 4-Star Rating from Charity Navigator
The Marfan Foundation’s sound fiscal management practices and commitment to accountability and...
The Marfan Foundation is Deeply Offended by VEEP for Using “Marfan Syndrome” as a Disparaging Remark
The Marfan Foundation is deeply offended by the highly acclaimed HBO program, VEEP, and its...
RENT Cast Members from the Past 20 Years to Perform at New York City Heartworks to Honor Jonathan Larson
Daphne Rubin-Vega, Fredi Walker-Brown, and Tony Award winner Wilson Heredia lead a group of two...
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