The Marfan Foundation Launches Marfan Awareness Month on February 1 with Multi-pronged #IKNOWMARFAN Campaign
Social media and grassroots events planned to raise awareness of the signs of Marfan and related...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
The Marfan Foundation to Honor Scientist Christine Gurnett, MD, PhD, and Marfan Clinic Nurses and Staff at Heartworks St. Louis Gala on March 4
Christina Gurnett, MD, PhD, Associate Professor of Neurology, Washington University School of...
Dr. Heidi Connolly Named Chair of Professional Advisory Board
The Marfan Foundation is pleased to announce that Heidi Connolly, MD, is now the chair of its...
Recording of Physical Activities Guidelines Conference Call Now Available
The recording of our conference call about the physical activity guidelines for Marfan syndrome...
The Marfan Foundation Responds to Isaiah Austin Announcement
Last night, Isaiah Austin -- who was diagnosed with Marfan syndrome in 2014 and had to withdraw...
The Marfan Foundation Announces Collaboration with American Heart Association on Pilot of My Research Legacy™
The Marfan Foundation announced today its collaboration with the American Heart Association (AHA)...
Now Available: Expanded Fact Sheet on Heart & Blood Vessels in Marfan Syndrome
The Marfan Foundation’s fact sheet about the heart and blood vessels in Marfan syndrome has been...
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