CRISPR and Marfan Syndrome
Have you heard of CRISPR gene editing technology and wondered if it could one day be used to treat...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
The Marfan Foundation Announces Honorees for 2018 HeartWorks in New York City
As the Marfan syndrome and related disorders community celebrates Marfan Awareness Month, The...
The Marfan Foundation to Celebrate a Decade of Progress at the 10th Heartworks St. Louis Gala, on March 17
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#KnowFightWin for Marfan Awareness Month
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New Physical Activities Resource Now Available
The Marfan Foundation is now offering a new resource featuring physical activity guidelines for...
To Know or Not to Know: Genetic Testing and Marfan Syndrome
How the value of genetic testing has improved Just a few years ago, diagnosis of Marfan...
Survey Results Reveal Greatest Obstacles to Quality of Life
In a survey conducted by The Marfan Foundation to identify the quality of life issues in the...
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