The Marfan Foundation Presents Awards at Annual Conference
In recognition of the significant contributions of volunteers throughout the country, The Marfan...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
The Marfan Foundation Brings its 32nd Annual Conference to Rochester, MN, August 4-7, 2016
The Marfan Foundation will hold its 32nd Annual Conference in Rochester, MN, on August 4-7. The...
The Marfan Foundation Earns 4-Star Rating from Charity Navigator
The Marfan Foundation’s sound fiscal management practices and commitment to accountability and...
The Marfan Foundation is Deeply Offended by VEEP for Using “Marfan Syndrome” as a Disparaging Remark
The Marfan Foundation is deeply offended by the highly acclaimed HBO program, VEEP, and its...
RENT Cast Members from the Past 20 Years to Perform at New York City Heartworks to Honor Jonathan Larson
Daphne Rubin-Vega, Fredi Walker-Brown, and Tony Award winner Wilson Heredia lead a group of two...
Congressional Representatives Take Steps Towards Enhanced Athletic Screening
Earlier this week, Maryland Congressman Chris Van Hollen and Congressman Mike Fitzpatrick (R-PA)...
The Marfan Foundation to Honor Weill Cornell Medicine Cardiac Team and Jonathan Larson, the Late RENT Playwright, with Hero with a Heart Award at April 14 Benefit
The Marfan Foundation is honoring the Weill Cornell Medicine Cardiac Team – Drs. Richard...
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